Celebrating You Son on your Day!
Every year Montora gets older and it becomes more apparent that he isn’t a baby anymore and he continues to defy the odds of what doctors said his life would be like. This year celebrated Mj’s Fresh Prince 16th birthday he was born September 26, 2005. Montora was in full performance mode at the party. He posed for pictures and hung out as much as he could. We had a bowling party which he typically loves to do. We had a Fresh Prince themed party with cake, no ice cream (he doesn’t like ice cream) , drinks, food, snacks, arcade and tons of people. I guess because it was his party day he did not want to participate in bowling. He literally did not even get out on the lanes. I tried to pretty much drag him to the lane and he pulled away at all costs. He spent most of his time enjoying the arcade and his cousins being next to him and staying close to his Dad. His Dad is one of his most favorite people and his Auntie T.
Montora loves it when you sing Happy Birthday to him! This was one of the highlights of his night! Getting sang Happy Birthday sitting across from his Dad!
His birthday party allowed Mj’s family to outwardly express how much they love and support him and be over the top in loving on him.He either lets you love on him, hug and kiss him or not, he is really cut and dry in that area. He received soo much love, soo many hugs and gifts of love. He loves love, loves being the center of attention and getting sang happy birthday! Loves to give hugs and see his cousins, friends and family. Some of the guests attending traveled hundreds of miles to celebrate the life of this wonderful happy, big strong opinionated boy. I love him!
I do believe that anxiety is starting to play a role in how Montora interacts outside of our house. Prior to Covid, I made sure that we had weekly outings to make sure Montora had interaction with multiple individuals at one time. Both with family and also with a group of people we did not know! We had Friday date nights out for dinner and at least twice a month tried to find a festival or event for us to attend. With Covid this has been challenging for us so I believe he is showing signs of not wanting to be out of the house for long periods of time. There were several times where everyone was partying and he was trying to go to the car. He goes to school everyday but the building is a familiar place and he has people that he genuinely enjoys so he doesn’t want to leave. We also are still unable to wear a mask which means this puts even more of a strain on us when going out because his sensory issues say NO to masks. We have not been able to get on a plane because of wearing a mask. It’s just really not happening.
After 16 years we have soo many things to be thankful for! Walking, toilet training, going to school, controlling seizures, using pics to communicate, sitting next to people without hitting them all the time. Showing love to family and friends and this may seem small but to me it speaks volumes… Sleeping through the night.Kids with Angelman’s syndrome have a really hard time sleeping at night. It really made me happy to celebrate Montora’s birthday! My son enjoyed celebrating his born day! Happy Birthday again Son Son! Cheers! Check out our Instagram for more photos of the big day!
Momma Loves you!
Life with Montora 