About

Hello Friends and Family! Thank you for checking us out!!.

My son Montora has Angelman Syndrome and was diagnosed when he was 2 years old.

Angelman Syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother. He is non verbal and uses pictures, signs and AAC to communicate.

Montora is my only child, he does have one sister who is not mine and lives with her mom and dad. We have been our single family just me and him since he was 3- 4 years old. I have known that he was different since about 6 months when he started to not hit those milestones that other kids hit during those first months in life. Our lives have been full of differences from the start which I believe helps me live with the uncomfortable-ness with less discomfort than most because this life is all I know.. Our life has always just been different.

I am a mother, aunt, sister,daughter and friend. I am not a writer. I am Montora’s mom, support system, friend, advocate and at times his pin cushion. We are a family of two and are fortunate to have a loving and large extended family that provide support and love in numerous ways for us in our daily lives. I always operate from a place of love and extreme responsibility.

I decided to create a space for myself that; shares what it is like to live with a child that has Angelman syndrome, encourage parent, caregivers, and families to be present in the lives of their loved ones who are different, to stay strong and to explain how me and my special, smart, funny son make life work for us .

Here is what I want….Families, mothers, fathers caregivers to know that everyday is an adventure. We have ups and downs and we do not know what the future holds. There are many families of “two” and it takes a toll on everything we do, you have to find ways to pull yourself outta the ruts… the sadness…. and continually move forward to the positive and happiness that is store for you.

Walk through life with us, find empathy for others with differences and have a better understanding of this life that we are living. Thank you for stopping by and checking us out. It is my hope that you leave this space with more knowledge about Angelman syndrome, what our life is like, find support around self love and feel empowered to keep doing life in the most healthy, positive way you can.

Taysha